A Nordic Spinal Cord Injury registry (NordicSCIR) was established with support from the Nordic council of ministers in 2017. The aim of the registry is to improve care for individuals with Spinal Cord Injury (SCI), both traumatic and non-traumatic. NordicSCIR registers data and facilitates comparisons regarding injuries, treatment, and outcomes between patients, centers and countries.
NordicSCIR is based on the International SCI Data Sets. Registration is done electronically in the Medical Registry System (MRS). NordicSCIR includes all patients with SCI, hospitalized in one of the seven SCI units in Denmark, Norway, Iceland or in Linkoping, Sweden (included 2018). The other SCI units in Sweden are planned to be included in the future. Written informed consent is obtained. Information is sent through the Norwegian Health Network, providing efficient, secure electronic exchange of patient information. Data controller is St. Olav’s University Hospital, Trondheim, Norway. The MRS platform is adapted to multilingual use.
Please visit the NordicSCIR web site for more information and annual reports. The annual report shows the results from six quality indicators and Patients Reported Outcome Measures (PROM), patient characteristics, and other relevant analyses.
Contact
Annette Halvorsen, MD, PhD, Specialist in physical medicine and rehabilitation, Head of the Norwegian and Nordic spinal cord injury register, Department of Medical Quality Registries, St. Olavs hospital, Trondheim University Hospital, Trondheim, Norway.
Ann Louise Pettersen, RN, Specialist nurse in rehabilitation, Registry Coordinator for the Norwegian spinal cord injury registry and the Nordic spinal cord injury registry, Department of Medical Quality Registries, St. Olavs hospital, Trondheim University Hospital, Trondheim, Norway.