A Nordic Spinal Cord Injury registry (NordicSCIR) was established with support from the Nordic council of ministers in 2017. The aim of the registry is to improve care for individuals with Spinal Cord Injury (SCI), both traumatic and non-traumatic. NordicSCIR registers data and facilitates comparisons regarding injuries, treatment, and outcomes between patients, centers and countries.
NordicSCIR is based on the International SCI Data Sets. Registration is done electronically in the Medical Registry System (MRS). NordicSCIR includes all patients with SCI, hospitalized in one of the seven SCI units in Denmark, Norway, Iceland or in Linkoping, Sweden (included 2018). The other SCI units in Sweden are planned to be included in the future. Written informed consent is obtained. Information is sent through the Norwegian Health Network, providing efficient, secure electronic exchange of patient information. Data controller is St. Olav’s University Hospital, Trondheim, Norway. The MRS platform is adapted to multilingual use.